Tribute : Sam Berns (1996-2014)

We hope you must know him, inspirational Sam Berns. Though he lived short, he inspired many people to take life positive and happy.

lifeaccordingtosamSampson “Sam” Gordon Berns (October 23, 1996 – January 10, 2014) was an American who suffered from progeria and helped raise awareness about the disease.

He was the subject of the HBO documentary Life According to Sam is about one family’s courageous fight to save their only son from a rare and fatal disease, progeria. The average age of death from progeria is 13, there is no treatment, and no cure. Dr. Leslie Gordon and Dr. Scott Berns are set on changing this. When their son Sam, now 16 years old, was diagnosed with progeria at age two, doctors told Leslie and Scott to enjoy Sam while they could. They refused to believe this was the answer. In less than a decade, their advances have led to identifying the gene at fault, creating the first drug trials for treatment, and revealing the amazing discovery that progeria is linked to the aging process in all of us. – IMDB

In Memory of Sam Berns :

This is an excerpt from  (Whom Sam mentioned as his friend on the TEDEX Video above)

In a heartbreaking phone call from his parents, I learned of the death of Sam Berns, a courageous young man with Hutchinson-Gilford Progeria Syndrome. Sam may have only lived 17 years, but in his short life he taught the rest of us a lot about how to live.

Sam’s parents, Scott Berns and Leslie Gordon, both physicians, introduced me to Sam more than a decade ago. At that time, no one knew the cause of this extremely rare disease that causes children to age at a dramatically accelerated pace, leading to death from heart attack or stroke at the average age of 13…

(click here to read the complete article)

His parents, Scott Berns and Leslie Gordon, both pediatricians, received their son’s diagnosis when he was less than two years of age. Roughly a year later, they established the Progeria Research Foundation in an effort to increase awareness of the condition, to promote research into the underlying causes of and possible treatments for the disease, and to offer resources for the support of sufferers and their families

Courtesy : A. Noah via YouTube,  , IMDB and Wikipedia.

15 thoughts on “Tribute : Sam Berns (1996-2014)

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  1. Such an amazing person, to have developed his powerfully positive attitude at such a young age. It WAS very inspirational–thank you so much for posting, Kate!


  2. Reblogged this on Odyssey of a Novice Writer and commented:
    I came across this post and video several days ago, and it continues to stay with me. I hope you’ll take some time to listen to Sam Berns. Last week, I wrote a post in which I quoted Abraham Lincoln’s remark that people are, basically, as happy as they choose to be. Well, Sam Berns’ life was a testament to that philosophy as well as to the human spirit. Listen to this young man’s thoughts on how to be happy. I think you’ll be as captured by his story as I continue to be. RIP, Sam Berns.


    1. Truly. We have no other choice now to miss such good souls but people like Sam always leave us a message that we can carry for life time. Hope Sam’s inspiration live with us forever. Thanks for joining the tribute.


  3. Reblogged this on Chronic Conditions & Life Lessons and commented:
    Listen to Sam’s speech given when he had not yet graduated from high school. He had more wisdom in his ‘littleness’ than many of those ‘bigger’ in the world. Truly inspirational, his passing has left a wealth of research for those diagnosed with his condition in the future. Thank you, Sam, for your life, your passion, your inspiration to others and for your legacy that will live on forever. Bless you.


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